Angel in Petaling Jaya

Semalam adalah hari konsert di Spastik selangor.persediaan telah dibuat berminggu awalnya. Memdangkan saya hanya hantar dan drop oya ke sekolah, banyak proses persediaan yang saya terlepas termasuklah rehearsal day. Segala komunikasi saya hanya ikuti melalui whatsapp.

Alhamdulillah, saya siap2 dah block kalendar saya dan menghadiri hari konsert pada 27 ogos.

It was a success i would say. We had Michael Jackson, gendang show, merdeka show, few singers, all performed by cerebral.palsy kids and individuals. I.must say, i am never this.impressed.

Sewaktu menyiapkan oya dan rakan2 untuk show Lotus n bee, satu soalan terpacul dari mulut saya.

Boleh ke oya buat neh?

Tugas oya adalah pergi dari satu watak ke satu watak, sentuhkan magic wand ke kepala mereka.

Cikgu menjawab, yes. Oya boleh ingat semua steps dan bila que untuk keluar tanpa perlu mengajar banyak kali . Waktu rehearsal pun sama.

Bangga dan segan, datang pd wktu yg sama.

Dalam masa yang sama, seorg ibu kepada anak Cp telah datang pada saya. Katanya;

Oya bagus. Dia jaga kawan2 dia, betulkan  tangan dan kaki kat wheelchair, lap mulut, etc etc. Sama mcm kat kelas cikgu mim kot.

Moral nya, Jangan underestimate anak CP kita.
I did, and i wish i could take it back.

Ps sharing dibenarkan.

24th Aug 2015

Oya had a bad night.
She was grumpy and jumpy.
Threw her cup across the living room.
Stomped on her fave bread.
I wonder why.
Mummy had to cheer her up.
Soon after, she is back to her joyful, sometimes annoying, self.
Phewwwww......

Oh, what's all the ruckus was all about?

She was having her fave warm Milo when she decided to dump her butterscotch bread into her drinks.

Of course, there was no milo left as the bad bread has "drank" her milo till there was not even a drop for her to drink.hence, the tantrum.

Hmmmm....that was surely bigger than the currency issue.

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But what i did next, made me feel guilty all night long.

Aggravated by the rush of anger towards someone else, i practically dragged her to the bathroom to clean her up. yes, yes, guilty as charged. and it left a mark on her neck as during the "struggle", she scratched her neck against the coffee table. Luckily, i had the edges of the table "bandaged" weeks before. if not, she might have a bleeding wound instead of scratches.

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i am not gonna keep on defending myself on whether i am a good mother or not.

be in my shoes for a day and let me know about it :)

Huk.aloh..

Lokasi: R&R Perasing
Tarikh: 22 Julai 2015, Rabu.

Sekali lagi, oya menjadi perhatian di taman permainan. Siap menjadi bahan ejekan. Melihat kepada sang pengejek, hati menjadi panas. Jemariku yang mulus sudah siap digenggam, teringat kembali bunga2 Seni Silat Gayung Patani yang dipelajari di sekolah dulu.

Aku simpan balik penumbok aku (bajet kuat la).

5 orang budak. Sorang tuh takde la budak mana. Dah boleh kawin dah pun walaupun PT3 hancus. Hmmm apa aku nak buat neh.

Tarik nafas lu. Papehal jangan belasah anak orang zatul oiii...

Aku pun bersuara dengan suara yang penuh irama keibuan.

"First tengok budok lagu neh ko?"

Diam. Takde reaksi.

"Haaaaa...neh la anok istimewa, anok special. Kerajaan goyak anok OKU. Orang takdok perasaan kata anok cacat. Ke guane?"

Diam lagi.

"Tapi dik (wahhh perasan muda aku di situ), guane2 pung, anok lagu neh, kalu jadi gapo2 pung, mereka direct masuk syurga."

Ada mata terbeliak.

"Buleh ko.kita mengata orang lain, lagi2 ahli syurga?. Best dik main dengan ahli syurga neh. Dia mano tahu nok.khianat ke.orang..yang dia tahu, gelak2, happy. Maghi la main skali".

Yang sudah beranjak remaja berlalu pergi. Lantak kaula nak.mengadu ke hapa.

Tapi anak2 yang belum akil baligh, kekal.di situ. Mula2 hanya meninjau2 aktiviti oya. Lama kelamaan, mereka bermain sekali.

Ada senyuman yang terukir.

#kenaliCPsayangikami #duniaoya

Oya & kelas tambahan

Setiap hari ahad, oya ada kelas tusyen kat masjid bangsar. Kelas 2 jam 10.30 till 12.30 and kadang2 oya extend pegi 3 jam sebab dia suka layan budak2 kecik dlm kelas 12.30.

Kenapa.jauh.no? Sebab tempat aku kat sunway dan subang nun ttakde. Tapi takpelah. Janna duduk jauh kat nottingham pun.bole datang gak.

kelas neh cikgu mim yang buat. Khas untuk CP dan beberapa pengecualian untuk beberapa murid lain.Memang terbaik cikgu neh. Dahlah lemah lembut, pandai mengajar lak tuh. Untung si pakcik zainol.

Ajk masjid neh memang supportive kat aktiviti2 kelas cp neh. Parking OKU je ada dua dah. Last time buat aktiviti ajk siap datang wooo.

Selain itu, semasa kanak2 lain bercuti, setiap hari.isnin oya ada terapi dan swimming kat sekolah dia, spastic selangor. 9.30 - 12 noon. Aku soh abang dia teman. Bergaji u ols. Yela..bagi insentif sikit.

Gambar GIF tuh diambik hari neh. Dri parking ke kelas ambil masa 15 minit sebab dia nak jugak pakai selipar tih. Redha je la. Dia boleh berjalan pun aku dah bahagia.

Checklist untuk bulan disember:
1. Jumpa doctor untuk surat pengesahan yang oya boleh ikut horse riding next year kat sekolah.

2. Repair laptop oya. Januari nak guna kat kelas tusyen.

Now that i have 3 hours to spare today while.waiting for oya,nak gi cuci keta la. Isi minyak ron97 nak test power tak power. Pastuh sbung membaca.

Bangsar village kat sebelah neh memang amat menggoda.tapi abaikan.

Laaaaa....ko baca abis ke entry neh? Aku pun main tulis je..hehehhe

Oya. Dan selipar.jepun

Perghh...memang mencabar kesabaran hobi oya yang satu neh.

She loves to wear this..not.so japanese rubber cheapo slipper.

She wears them while riding her motobike. While walking along the corridor. And to the babysitter's.

Just imagine how slow she walks. I ended up have to dukung her sebab nak cepat.

Tapi. I guess this is another milestone fpr her. She is trying to don the slipper which is quite tricky for her due to her jerky movement.

Well. Kalau ye pun...jangan la pakai selipar mama oya oi.

Oya dah graduate!!!

For 2014 laaa...

Please ignore the kehadiran ye.heheheh.

She is in pre primary and 2015 pun will maintain at pre primary.

But looking at her report card, i can't believe she has gone this far.
We have more work to do oya especially when it comes to your writing.

Allah dah makbulkan doa kami untuk oya boleh bergerak.sendiri.

Sekarang kita concentrate supaya Boleh menulis pun jadi la.

Amin.

Oya. Just oya.

Suddenly i have the urge to share these videos of oya. This was recorded last month in pantai batu buruk.

I used to keep her progress to myself. Fearing others may think that i talk big one. But lately, i get the feeling that some people needs motivation.

Well, those who have seen or know oya before the age of 4 years old, will know that she was not able to stand at all.

Diagnosed with Cerebral Palsy at 2 years old after a traumatic birth experience which caused oya to be admitted in NICU for 2 weeks, we were told to not hold our hope high. Seriously, she was hanging to dear life those days in NICU. she was on constant medication and she was on the 2nd drug when we were told that she might not make it. Hokay? 50-50 org kata.

We authorised the doctor to administer the 3rd drug and alhamdulillah, the seizures were gone and she could breathe on her own.

To say that oya was not severely affected, is to belittle the efforts done by us, her therapist, family members and my ever loyal babysitter. We had rough days, financially,emotionally.and physically. Back then, there was no MYCP nor any support group till 2010/2011. i had nowhere to refer to except for occasional information in the internet.

But yeah, we did held our hope high and i remembered bringing her to local tukang urut whatnots.

And yeah, we do have our worries and obstacles. It was not easy.

She may not be bedridden and need wheelchair all the time, but do not ever say that her case is not so serious, so-so. We worked hard,prayed hard,sacrificed  and voila..at the age of 4, she started to stand.

Now, at the age of 7 we can see what she is able to do. Aloooo...don't la.compare with normal kids.

My intention is.not to show off, nor belittle others. I just want to show that with hard work and prayers, fate can turn around. Trust me. Been there.

Video: to upload later.