MICF2015

#teddybearhospital  #micf #duniaoya

while looking for solat and mengaji materials at Malaysia islamic children's fair at SACC Shah alam for oya, we decided to let her join this activity. being the only CP kid here at this round, i could see that the staffs tried their best to entertain her. thanks. for simply trying.

and oh, i saw booth no28 selling the giant puzzle for belajar solat but i guess buku belajar solat upin dan ipin will attract her better. finally, i found the flash card for mengaji. cantik and easy.

there are several booths selling susu kambing, jubah2, books, early educations centres i.e genius aulad, sevenskies, etc.

oya tried the kinetic sands and jelly as well. interesting. will explore more.

First Aider course for parents

12th sept 2015. Damansara endah. Amir's gym.

A first aider course was organised and damn, it was not as expected.

I thought it was gonna be boring.
But all we had was good stress releasing laughter and bonding session.

Of course, we learnt like a lot. While.laughing. with amazement at what we always do.

For example, if i were to have cut on my finger, i would put it in my mouth first.

The paramedic went ewwwww.....hahahaha....

We were reminded that TV has serious big impact on our lives.

What is our emergency number?
911?991?

It's 999.or 112 from HP.

Yet, 5% of malaysians still answer 911. Like.us. hahahahahah...so far the only tv show showing 999 is the 999 show from TV3. it's not enough apparently.

So, in emergency, we should say please call ambulance at 999. Otherwise, some people will actually call 911. Like us...heheheh

The one that is important for us parents is, if our child.is having seizure, like.most CP kids, just be calm, and put them on their side. The the seizure subside. Standby diazepam and observe the timing, what they were doing before, during dan selepas seizure.

Banyak yg i wish i could share here today.but i am too lazy.now.

Till then

Angel in Petaling Jaya

Semalam adalah hari konsert di Spastik selangor.persediaan telah dibuat berminggu awalnya. Memdangkan saya hanya hantar dan drop oya ke sekolah, banyak proses persediaan yang saya terlepas termasuklah rehearsal day. Segala komunikasi saya hanya ikuti melalui whatsapp.

Alhamdulillah, saya siap2 dah block kalendar saya dan menghadiri hari konsert pada 27 ogos.

It was a success i would say. We had Michael Jackson, gendang show, merdeka show, few singers, all performed by cerebral.palsy kids and individuals. I.must say, i am never this.impressed.

Sewaktu menyiapkan oya dan rakan2 untuk show Lotus n bee, satu soalan terpacul dari mulut saya.

Boleh ke oya buat neh?

Tugas oya adalah pergi dari satu watak ke satu watak, sentuhkan magic wand ke kepala mereka.

Cikgu menjawab, yes. Oya boleh ingat semua steps dan bila que untuk keluar tanpa perlu mengajar banyak kali . Waktu rehearsal pun sama.

Bangga dan segan, datang pd wktu yg sama.

Dalam masa yang sama, seorg ibu kepada anak Cp telah datang pada saya. Katanya;

Oya bagus. Dia jaga kawan2 dia, betulkan  tangan dan kaki kat wheelchair, lap mulut, etc etc. Sama mcm kat kelas cikgu mim kot.

Moral nya, Jangan underestimate anak CP kita.
I did, and i wish i could take it back.

Ps sharing dibenarkan.

24th Aug 2015

Oya had a bad night.
She was grumpy and jumpy.
Threw her cup across the living room.
Stomped on her fave bread.
I wonder why.
Mummy had to cheer her up.
Soon after, she is back to her joyful, sometimes annoying, self.
Phewwwww......

Oh, what's all the ruckus was all about?

She was having her fave warm Milo when she decided to dump her butterscotch bread into her drinks.

Of course, there was no milo left as the bad bread has "drank" her milo till there was not even a drop for her to drink.hence, the tantrum.

Hmmmm....that was surely bigger than the currency issue.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

But what i did next, made me feel guilty all night long.

Aggravated by the rush of anger towards someone else, i practically dragged her to the bathroom to clean her up. yes, yes, guilty as charged. and it left a mark on her neck as during the "struggle", she scratched her neck against the coffee table. Luckily, i had the edges of the table "bandaged" weeks before. if not, she might have a bleeding wound instead of scratches.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

i am not gonna keep on defending myself on whether i am a good mother or not.

be in my shoes for a day and let me know about it :)

Makanan sabah

Hari neh, duk bercerita pasal makanan dalam salah satu group whatsapp aku yg mana 99% orang sabah.

Macam2 keluar la especially 4 jenis makanan neh.

Meh aku summarykan 4 jenis makanan tuh. Nk details, rajin2 la sikit guna pakcik google ye.

Bosou = ikan terutama ikan sungai, yang diperam dengan nasi dan garam. Lepas seminggu atau 2 minggu, bolehla makan. Bau : katanya agak busuk.aku sendiri tak penah makan hehehehhe.
Kalau tak kena caranya, ulat pun boleh dok ada dalam tuh.

Hinava : ikan mentah, dicampur dengan limau, garam dan lada (at least) pastuh makan.la dengan nasi. Hinava tuh dalam bahasa dusun. Dalam bahasa bajau, namanya kinilau. Lepas buat, serta merta boleh dimakan. Kalau kena caranya, memang sedap.

Ikan pekasam: neh asalnya dari belah utara semenanjung. Yang aku selalu ikan ialah ikan sepat. Pekasam neh melibatkan garam, beras dan proses pengeringan berulang kali. Aku slalu.goreng dengan cili padi dan asam limau. Perghhhh..

Lato: sejenis makanan rumpai.laut . Kaum bajau memang slalu.makan neh jadikan ulam. Again, limau dan cili padi memang kena ada lah. Tapayah masak bagai. Bersihkan aje. Aku memang auka benda alah neh.

Tak sabar.nak balik sabah bulan sept.nanti. nak cari Tuhau lagi. Apa itu tuhau? Haaaa google la. Baik punya bau.

IKAN PEKASAM

BOSOU

HINAVA/KINILAU

LATO SEAWEED

Huk.aloh..

Lokasi: R&R Perasing
Tarikh: 22 Julai 2015, Rabu.

Sekali lagi, oya menjadi perhatian di taman permainan. Siap menjadi bahan ejekan. Melihat kepada sang pengejek, hati menjadi panas. Jemariku yang mulus sudah siap digenggam, teringat kembali bunga2 Seni Silat Gayung Patani yang dipelajari di sekolah dulu.

Aku simpan balik penumbok aku (bajet kuat la).

5 orang budak. Sorang tuh takde la budak mana. Dah boleh kawin dah pun walaupun PT3 hancus. Hmmm apa aku nak buat neh.

Tarik nafas lu. Papehal jangan belasah anak orang zatul oiii...

Aku pun bersuara dengan suara yang penuh irama keibuan.

"First tengok budok lagu neh ko?"

Diam. Takde reaksi.

"Haaaaa...neh la anok istimewa, anok special. Kerajaan goyak anok OKU. Orang takdok perasaan kata anok cacat. Ke guane?"

Diam lagi.

"Tapi dik (wahhh perasan muda aku di situ), guane2 pung, anok lagu neh, kalu jadi gapo2 pung, mereka direct masuk syurga."

Ada mata terbeliak.

"Buleh ko.kita mengata orang lain, lagi2 ahli syurga?. Best dik main dengan ahli syurga neh. Dia mano tahu nok.khianat ke.orang..yang dia tahu, gelak2, happy. Maghi la main skali".

Yang sudah beranjak remaja berlalu pergi. Lantak kaula nak.mengadu ke hapa.

Tapi anak2 yang belum akil baligh, kekal.di situ. Mula2 hanya meninjau2 aktiviti oya. Lama kelamaan, mereka bermain sekali.

Ada senyuman yang terukir.

#kenaliCPsayangikami #duniaoya

Risks of reccurrence

What i went through last month, was cause by a reccurrence on my chest wall. Yes, the tumour was cancerous.

At first, the team wanted to remove my 1st rib and replace with titanium rib.
I could see they were unsure themselves.
Hence, Dr Aisyah, the head of Breast Surgery was called for opinions.

Aaaaaannnddd yes, she was not keen.to remove my.rib.

Ok then. Let's try PET SCAN before deciding to.remove any rib whatsoever.

This particular scan is.not.available.in PPUM or any hospital except at IKN, hospital putrajaya. But since it's covered under company's hospitalization benefit, let's just go to private lah.

I can't recall.the name of the private facility in Bangsar, Jalan Maarof but it sounded like Maharani.

PET SCAN costs about rm2k bu with referral from hospital, it will.cost about RM1K. They will.provide a thorough report and.films for us to...try to understand. Hehehehhe...

Alhamdulillah, the tumour didn't.penetrate into.any bones nor my lungs. Phewwww...what a close call.

So, we.proceed with removal of the lump which i will share in another post.

Hence, please note that reccurrences are common but of.course,.it.is dreadful. It means, there are something not right.or not enough in our lifestyle, diet, preventive actions as well.as our medication.

For.me, tamoxifen didn't work because i am still havingy period every 2 months amd.i had a reccurrence!

Seriously, i need to help myself.

Macam CBES

Alkisahnya, aku baru sampai rumah. aku perasan ada kunci kereta dalam paperbag.

Okaaaayyyyyyy bestnye. laki aku nak surprise kan aku neh. Aku tgk cik abang aku tersengih2. Walaweh..Macam dalam cik bunga encik sombong tuh. Dapat hadiah kereta. Perghh pengaruh cerita..tak bley blah.

Bestnye..dalam masa 5 minit aku dah fikir. Mana nak park, agak2 kalau aku sewakan pun ok gak.

Eh, mana keretanya.
Aku pun try la tekan button.

Perodua Viva!!!!. Parked kat sebrang jalan. OMG,! takpela. Second pun second la. Jimat sikit belanja minyak kot.

Rupa2nya:
1. Laki aku sengih2 tgk mesej whatsapp.
2. Diapun pelik kenapa ada kunci keta extra.
3. keta tuh belongs to couple yang tolong kami angkat barang tadi. Aku tinggal mesej kat keta aku.
4. Kunci dah pulang balik.
5. Tkde hadiah kereta.
6. Sekian.

BRT-SUNWAY LINE

http://www.carlist.my/news/free-rides-brt-sunway-line-next-two-months/14168?utm_source=facebook&utm_medium=cpc

Neh cerita PM naik BRT Sunway line.aku tak berminat nak komen pasal dia.

BRT Stands for Bus Rapid Transit. Macam.LRT tuh tapi guna bas. Buat masa neh, laluan.pun se coet je.

Siapa2 yang duk.dekat2 tuh boleh la try. Dekat sangat dengan rumah aku. Tapi service neh start dari komuter setia jaya sampai USJ 1 depan Summit.tuh. maybe lepas neh akan ada extension kot.

Tapi kalau ikut.map meh, nampak.macam ada  stesen pertukaran dengan LRT. bagus gak tuh.

Kalau maintenance dan jadual cantik, aku rasa ramai.je yang akan.guna.

Lepas tuh, mentaliti orang ramai satu hal la. Kat stesen.mentari.neh aku tgk.siap ada lift. Excellent. Cuma buat masa sekarang, aku.tak.nampak.nak.park.kereta kat mana lagi. Takkan nak.menapak dari rumah kan.

Tapi serius, sejak ada BRT neh, jalan.kat PJS 8/9 neh pun cerah je, cantik.je. aku siap plan nak.jogging kat jalan besar neh plak. Amacam, kau hado?

Audit oh audit

Hari tuh kat miri.
Pastuh IFT. Pastuh GO2.

Today, kemaman office.
Penat dah 2minggu audit saja.
Dengan demam and flu, memang terbaik.

Dah habis? Belum bro beluumm...
Ada lagi GO2 Project and HQ.

Must be done sebelum aku operate 4 Jun.

Gambar neh lead auditor aku. Kak Ti namanya. Suka sangat aku jadi auditor.

Next is Kerteh airport. Yup, cenonet je.

Okla.nak masuk kapal dah. Eh dah masuk dah pon. Kak Ti lagi.

Bukit Larut Taiping

LagiKalau nak naik #bukitlarut or #maxwellhill, be here byb7am for the ride ticket. Usually, by 9am dah habis. Tiket is just RM6 per pax.  Sunday usually full for prayers. So bila aku dapat naik.bukit.larut neh???? Kalau nak naik.jalan kaki mau 4 jam jugak wei. Naik land rover pn 30min.

Frust lagi la.hmmm..tak sesuai untuk meneruskan misi esok pagi.

Maybe next time. Bila dah ada train mcm penang hill. Or sewa chalet kat atas tuh.

Cantik sangat ke atas tuh?

Taiping Getaway

Wow...lama sangat tak update.

Hari neh teman ke Tepeng. Wedding Shafy and Fella katanya. Ate, tau.mau jalan2 ke? Harusla kan.dalam kepala takde lain, nak.ke Bukit Larut or Maxwell Hill. Kita tengok le macamana ye.

Teman singgah Flemington Hotel. Kat Taman Tasik. All in all RM199 plus RM53 for additional single bed. Kata king size bed. Tipah tertipu. Rasanya king size bed besar lagi kan.

Next time, try Legend Inn plak. Sebab aku dah book sebenarnya. Cik abang yang nak.try Flemigton. Takpela..birthday diakan..follow saja la..

Nak pegi jalan2 dulu

Recurrence

When talking to cancer survivor or cancer patient, do not assume that you understand what we went through. Do you go through chemo 6 times?

It was, or it is...a traumatic experience which some of us are still going through. Do you have any lufe endangering growth in you?,

It was so devastating that some of us may panic. Have you ever being told that you will be given a.medication that will also destror your healthy cells?

It's not encouraging at all to say, hey, at least you are at stage 1. Or hey at least your cancer is not as bad as my uncle's.

No matter how much treatments or prevention actions are taken, having cancer, any cancer at all, or surviving it means only one thing.

Survival.

My name is zatul and i have #breastcancer.

Siap da regrowth lagi. Twice u olsss...so yang ke tiga neh, i nak try alternative treatments la. Unless if they manage to talk me out of it. I dont know. Tunggu.la.selasa depan.

Oya & kelas tambahan

Setiap hari ahad, oya ada kelas tusyen kat masjid bangsar. Kelas 2 jam 10.30 till 12.30 and kadang2 oya extend pegi 3 jam sebab dia suka layan budak2 kecik dlm kelas 12.30.

Kenapa.jauh.no? Sebab tempat aku kat sunway dan subang nun ttakde. Tapi takpelah. Janna duduk jauh kat nottingham pun.bole datang gak.

kelas neh cikgu mim yang buat. Khas untuk CP dan beberapa pengecualian untuk beberapa murid lain.Memang terbaik cikgu neh. Dahlah lemah lembut, pandai mengajar lak tuh. Untung si pakcik zainol.

Ajk masjid neh memang supportive kat aktiviti2 kelas cp neh. Parking OKU je ada dua dah. Last time buat aktiviti ajk siap datang wooo.

Selain itu, semasa kanak2 lain bercuti, setiap hari.isnin oya ada terapi dan swimming kat sekolah dia, spastic selangor. 9.30 - 12 noon. Aku soh abang dia teman. Bergaji u ols. Yela..bagi insentif sikit.

Gambar GIF tuh diambik hari neh. Dri parking ke kelas ambil masa 15 minit sebab dia nak jugak pakai selipar tih. Redha je la. Dia boleh berjalan pun aku dah bahagia.

Checklist untuk bulan disember:
1. Jumpa doctor untuk surat pengesahan yang oya boleh ikut horse riding next year kat sekolah.

2. Repair laptop oya. Januari nak guna kat kelas tusyen.

Now that i have 3 hours to spare today while.waiting for oya,nak gi cuci keta la. Isi minyak ron97 nak test power tak power. Pastuh sbung membaca.

Bangsar village kat sebelah neh memang amat menggoda.tapi abaikan.

Laaaaa....ko baca abis ke entry neh? Aku pun main tulis je..hehehhe

Oya. Dan selipar.jepun

Perghh...memang mencabar kesabaran hobi oya yang satu neh.

She loves to wear this..not.so japanese rubber cheapo slipper.

She wears them while riding her motobike. While walking along the corridor. And to the babysitter's.

Just imagine how slow she walks. I ended up have to dukung her sebab nak cepat.

Tapi. I guess this is another milestone fpr her. She is trying to don the slipper which is quite tricky for her due to her jerky movement.

Well. Kalau ye pun...jangan la pakai selipar mama oya oi.

Hek eleh

Hek eleh No.1

Pernah tak ko dalam satu situasi, dimana tiba2 terdetik atau kau terasa "alangkah baiknya....." atau "untungnya kalau....."

Biasanya ekspressi neh kita guna untuk meluahkan hasrat atau keinginan kita atau apa yang kita rasa.

contoh eh..aku bagi contoh yang paling dekat dengan aku..

" untungnya dapat anak pandai2", "untungnya anak ramai", "kan best kalau oya ada adik."

statement2 tuh cuma luahan rasa aku yang berkeinginan sebegitu. dah aku tulis kat sini dah bukan contoh la jadinya kan.

TAPI, perlu ke ko kontra balik dengan "bersyukur dengan apa yang ada."

statement2 aku tuh nampak or dengar macam aku tak bersyukur ke?
aku tak redha ke dengan apa yang berlaku?
kalau aku tak redha atau bersyukur, dah lama kot aku kiok time aku tau aku ada kanser!!

hamlau tul. memang kadang2 ikut timing dan level of caffeine dalam badan, aku akan terasa dooohhh

suka2 nak counter dengan statement "syukur".

ko nak tau sangat apa makna syukur tuh?

elokla sangat la ko bersyukur sebab tangan aku tak sampai kat muka ko.

haaaa...kaaan.

Hek eleh No.2

ada orang bisnes kuih2, kek2, atau apa2 je lah yg ada kaitan dengan tepung neh.
especially kalau online.
bagusla. berdaya maju. apply skill yang ada.

tapi bisnes neh kena comes with good customer service level.

contoh eh..contoh eh..(contoh lagi)

"apa jenis kek ko ada?"
"apa yang ko nak?"

atau

"delivery charge ada?" dijawap "of course la ada"
dah berapa bongok? mungkin soalan aku salah tapi memang ko tak bole masuk sales line. fail.
tak pandai nak project soalan customer.

alo. aku pun sales gak dulu. cuma jual valve je. takde plak aku cakap kat customer "valve apa ko nak?" mau kena maki balik doh.


mungkin la aku cerewet kan. mungkin la aku demand.event aku slalu last minute.

tapi aku demand sebab aku nak cepat. aku takde masa. and i am a paying customer.
kadang2 aku jumpa gak supplier yang ingat dorang king. dorang control customer.
tak paham aku.lainla kalau customer menipu. ko nak ban segala suka hati la.


and yet, ko jangan lupa, banyak lagi supplier lain. mungkin ko akan kata " haaa...carilah supplier lain". betul. memang aku cari supplier lain. but don;t forget i also have friends yang memang takkan dapat recommendation untuk ko.

and yes. kalau aku ada masa, memang aku bboleh buat sendiri.nasib je aku takde masa. hak tuih!

ps kalau terasa nasibla.kalau rasa dah maju sangat, dah kaya sangat, dah bagus sangat, tapayah nak terasa pun.

Oya dah graduate!!!

For 2014 laaa...

Please ignore the kehadiran ye.heheheh.

She is in pre primary and 2015 pun will maintain at pre primary.

But looking at her report card, i can't believe she has gone this far.
We have more work to do oya especially when it comes to your writing.

Allah dah makbulkan doa kami untuk oya boleh bergerak.sendiri.

Sekarang kita concentrate supaya Boleh menulis pun jadi la.

Amin.

Oya. Just oya.

Suddenly i have the urge to share these videos of oya. This was recorded last month in pantai batu buruk.

I used to keep her progress to myself. Fearing others may think that i talk big one. But lately, i get the feeling that some people needs motivation.

Well, those who have seen or know oya before the age of 4 years old, will know that she was not able to stand at all.

Diagnosed with Cerebral Palsy at 2 years old after a traumatic birth experience which caused oya to be admitted in NICU for 2 weeks, we were told to not hold our hope high. Seriously, she was hanging to dear life those days in NICU. she was on constant medication and she was on the 2nd drug when we were told that she might not make it. Hokay? 50-50 org kata.

We authorised the doctor to administer the 3rd drug and alhamdulillah, the seizures were gone and she could breathe on her own.

To say that oya was not severely affected, is to belittle the efforts done by us, her therapist, family members and my ever loyal babysitter. We had rough days, financially,emotionally.and physically. Back then, there was no MYCP nor any support group till 2010/2011. i had nowhere to refer to except for occasional information in the internet.

But yeah, we did held our hope high and i remembered bringing her to local tukang urut whatnots.

And yeah, we do have our worries and obstacles. It was not easy.

She may not be bedridden and need wheelchair all the time, but do not ever say that her case is not so serious, so-so. We worked hard,prayed hard,sacrificed  and voila..at the age of 4, she started to stand.

Now, at the age of 7 we can see what she is able to do. Aloooo...don't la.compare with normal kids.

My intention is.not to show off, nor belittle others. I just want to show that with hard work and prayers, fate can turn around. Trust me. Been there.

Video: to upload later.

Japan movement.

Phewww....external ISO audit d habis. Alhamdulillah. Dah lepas pun aku dah cukup.lega. kena pulak tawon ini recertification pulak. Memang heavyla soklan2 yang dapat.

Minggu neh memg extra beban sikit la.
Dengan audiy. Appraisal. Delivery issues.mitigating internal.issues.
Tapi kita patut bersyukur. Aku patut bersyukur.
Masih lagi mampu untuk membantu ekonomi.keluarga.
Masih lagi mampu menyumbang.
Masih mampu untuk rasa diperlukan.
Masih mampu untuk.merasa sakit. Suka.penat.
Sebab kita masih diberi peluang untuk.bernafas.untuk.hidup.

Minggu neh oya banyak duduk dengan daddy. Rasa mcm first lady la plak kan. Seminggu tak nak.ke.sekolah. nak.duk.rumah katanya. Takpela.nak.oiii..daddy tak.keje skang.bleyla manja2 lebih sikit. Pow daddy paksa beli roti canai.kan. lama2.ko transform jadi preity zinta la neh oya oiii...amik contoh yg cun2 je aku neh.

Talking out daddy n manja....tadaaaa....ai dapat belated birthday present u.ols.
Kenapa ai.pilih jam.neh?
Sebab ai rasa muda. Sekian.

Ps tajuk? Ntahle tapi aku copy dari.jam aku.hehehhehe

Apa ada di Terengganu?

Ada dan tiada. Banyak dan sikit.

kenapa pulak aku cakap gitu?

dah kalau ko pegi Kuala Terengganu, ko duk dalam bilik hotel je, dan dalam kepala ko ada Pasar Payang je, memanglah tiada dan sikit tempat dan experience yang kau akan lalui.

Seperti tempat2 lain, Kuala Terengganu has lots of places and activity of interests yang ko boleh pegi dan cuba dan terai.Rasanya, tak perlulah aku cerita tempat2 yang common seperti Masjid Terapung, Pasar Payang, Batu Buruk Beach, Esplanade, i-city (eh, dua2 neh sama ke tak?), Chinatown, Vincci Kuala Terengganu yang selalu sales, Kopitiam Uncle Chua, Losong, Masjid Kristal dan...err...apa lagi eh...:D

Meh aku citer 1 tempat wajib pegi dan 1 makanan yang wajib carik everytime aku balik Kuala Terengganu. Not your usual Kopok Lekor & Pasar Payang hokay.