MICF2015

#teddybearhospital  #micf #duniaoya

while looking for solat and mengaji materials at Malaysia islamic children's fair at SACC Shah alam for oya, we decided to let her join this activity. being the only CP kid here at this round, i could see that the staffs tried their best to entertain her. thanks. for simply trying.

and oh, i saw booth no28 selling the giant puzzle for belajar solat but i guess buku belajar solat upin dan ipin will attract her better. finally, i found the flash card for mengaji. cantik and easy.

there are several booths selling susu kambing, jubah2, books, early educations centres i.e genius aulad, sevenskies, etc.

oya tried the kinetic sands and jelly as well. interesting. will explore more.

First Aider course for parents

12th sept 2015. Damansara endah. Amir's gym.

A first aider course was organised and damn, it was not as expected.

I thought it was gonna be boring.
But all we had was good stress releasing laughter and bonding session.

Of course, we learnt like a lot. While.laughing. with amazement at what we always do.

For example, if i were to have cut on my finger, i would put it in my mouth first.

The paramedic went ewwwww.....hahahaha....

We were reminded that TV has serious big impact on our lives.

What is our emergency number?
911?991?

It's 999.or 112 from HP.

Yet, 5% of malaysians still answer 911. Like.us. hahahahahah...so far the only tv show showing 999 is the 999 show from TV3. it's not enough apparently.

So, in emergency, we should say please call ambulance at 999. Otherwise, some people will actually call 911. Like us...heheheh

The one that is important for us parents is, if our child.is having seizure, like.most CP kids, just be calm, and put them on their side. The the seizure subside. Standby diazepam and observe the timing, what they were doing before, during dan selepas seizure.

Banyak yg i wish i could share here today.but i am too lazy.now.

Till then

Angel in Petaling Jaya

Semalam adalah hari konsert di Spastik selangor.persediaan telah dibuat berminggu awalnya. Memdangkan saya hanya hantar dan drop oya ke sekolah, banyak proses persediaan yang saya terlepas termasuklah rehearsal day. Segala komunikasi saya hanya ikuti melalui whatsapp.

Alhamdulillah, saya siap2 dah block kalendar saya dan menghadiri hari konsert pada 27 ogos.

It was a success i would say. We had Michael Jackson, gendang show, merdeka show, few singers, all performed by cerebral.palsy kids and individuals. I.must say, i am never this.impressed.

Sewaktu menyiapkan oya dan rakan2 untuk show Lotus n bee, satu soalan terpacul dari mulut saya.

Boleh ke oya buat neh?

Tugas oya adalah pergi dari satu watak ke satu watak, sentuhkan magic wand ke kepala mereka.

Cikgu menjawab, yes. Oya boleh ingat semua steps dan bila que untuk keluar tanpa perlu mengajar banyak kali . Waktu rehearsal pun sama.

Bangga dan segan, datang pd wktu yg sama.

Dalam masa yang sama, seorg ibu kepada anak Cp telah datang pada saya. Katanya;

Oya bagus. Dia jaga kawan2 dia, betulkan  tangan dan kaki kat wheelchair, lap mulut, etc etc. Sama mcm kat kelas cikgu mim kot.

Moral nya, Jangan underestimate anak CP kita.
I did, and i wish i could take it back.

Ps sharing dibenarkan.

24th Aug 2015

Oya had a bad night.
She was grumpy and jumpy.
Threw her cup across the living room.
Stomped on her fave bread.
I wonder why.
Mummy had to cheer her up.
Soon after, she is back to her joyful, sometimes annoying, self.
Phewwwww......

Oh, what's all the ruckus was all about?

She was having her fave warm Milo when she decided to dump her butterscotch bread into her drinks.

Of course, there was no milo left as the bad bread has "drank" her milo till there was not even a drop for her to drink.hence, the tantrum.

Hmmmm....that was surely bigger than the currency issue.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

But what i did next, made me feel guilty all night long.

Aggravated by the rush of anger towards someone else, i practically dragged her to the bathroom to clean her up. yes, yes, guilty as charged. and it left a mark on her neck as during the "struggle", she scratched her neck against the coffee table. Luckily, i had the edges of the table "bandaged" weeks before. if not, she might have a bleeding wound instead of scratches.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

i am not gonna keep on defending myself on whether i am a good mother or not.

be in my shoes for a day and let me know about it :)

Makanan sabah

Hari neh, duk bercerita pasal makanan dalam salah satu group whatsapp aku yg mana 99% orang sabah.

Macam2 keluar la especially 4 jenis makanan neh.

Meh aku summarykan 4 jenis makanan tuh. Nk details, rajin2 la sikit guna pakcik google ye.

Bosou = ikan terutama ikan sungai, yang diperam dengan nasi dan garam. Lepas seminggu atau 2 minggu, bolehla makan. Bau : katanya agak busuk.aku sendiri tak penah makan hehehehhe.
Kalau tak kena caranya, ulat pun boleh dok ada dalam tuh.

Hinava : ikan mentah, dicampur dengan limau, garam dan lada (at least) pastuh makan.la dengan nasi. Hinava tuh dalam bahasa dusun. Dalam bahasa bajau, namanya kinilau. Lepas buat, serta merta boleh dimakan. Kalau kena caranya, memang sedap.

Ikan pekasam: neh asalnya dari belah utara semenanjung. Yang aku selalu ikan ialah ikan sepat. Pekasam neh melibatkan garam, beras dan proses pengeringan berulang kali. Aku slalu.goreng dengan cili padi dan asam limau. Perghhhh..

Lato: sejenis makanan rumpai.laut . Kaum bajau memang slalu.makan neh jadikan ulam. Again, limau dan cili padi memang kena ada lah. Tapayah masak bagai. Bersihkan aje. Aku memang auka benda alah neh.

Tak sabar.nak balik sabah bulan sept.nanti. nak cari Tuhau lagi. Apa itu tuhau? Haaaa google la. Baik punya bau.

IKAN PEKASAM

BOSOU

HINAVA/KINILAU

LATO SEAWEED

Huk.aloh..

Lokasi: R&R Perasing
Tarikh: 22 Julai 2015, Rabu.

Sekali lagi, oya menjadi perhatian di taman permainan. Siap menjadi bahan ejekan. Melihat kepada sang pengejek, hati menjadi panas. Jemariku yang mulus sudah siap digenggam, teringat kembali bunga2 Seni Silat Gayung Patani yang dipelajari di sekolah dulu.

Aku simpan balik penumbok aku (bajet kuat la).

5 orang budak. Sorang tuh takde la budak mana. Dah boleh kawin dah pun walaupun PT3 hancus. Hmmm apa aku nak buat neh.

Tarik nafas lu. Papehal jangan belasah anak orang zatul oiii...

Aku pun bersuara dengan suara yang penuh irama keibuan.

"First tengok budok lagu neh ko?"

Diam. Takde reaksi.

"Haaaaa...neh la anok istimewa, anok special. Kerajaan goyak anok OKU. Orang takdok perasaan kata anok cacat. Ke guane?"

Diam lagi.

"Tapi dik (wahhh perasan muda aku di situ), guane2 pung, anok lagu neh, kalu jadi gapo2 pung, mereka direct masuk syurga."

Ada mata terbeliak.

"Buleh ko.kita mengata orang lain, lagi2 ahli syurga?. Best dik main dengan ahli syurga neh. Dia mano tahu nok.khianat ke.orang..yang dia tahu, gelak2, happy. Maghi la main skali".

Yang sudah beranjak remaja berlalu pergi. Lantak kaula nak.mengadu ke hapa.

Tapi anak2 yang belum akil baligh, kekal.di situ. Mula2 hanya meninjau2 aktiviti oya. Lama kelamaan, mereka bermain sekali.

Ada senyuman yang terukir.

#kenaliCPsayangikami #duniaoya

Risks of reccurrence

What i went through last month, was cause by a reccurrence on my chest wall. Yes, the tumour was cancerous.

At first, the team wanted to remove my 1st rib and replace with titanium rib.
I could see they were unsure themselves.
Hence, Dr Aisyah, the head of Breast Surgery was called for opinions.

Aaaaaannnddd yes, she was not keen.to remove my.rib.

Ok then. Let's try PET SCAN before deciding to.remove any rib whatsoever.

This particular scan is.not.available.in PPUM or any hospital except at IKN, hospital putrajaya. But since it's covered under company's hospitalization benefit, let's just go to private lah.

I can't recall.the name of the private facility in Bangsar, Jalan Maarof but it sounded like Maharani.

PET SCAN costs about rm2k bu with referral from hospital, it will.cost about RM1K. They will.provide a thorough report and.films for us to...try to understand. Hehehehhe...

Alhamdulillah, the tumour didn't.penetrate into.any bones nor my lungs. Phewwww...what a close call.

So, we.proceed with removal of the lump which i will share in another post.

Hence, please note that reccurrences are common but of.course,.it.is dreadful. It means, there are something not right.or not enough in our lifestyle, diet, preventive actions as well.as our medication.

For.me, tamoxifen didn't work because i am still havingy period every 2 months amd.i had a reccurrence!

Seriously, i need to help myself.

Macam CBES

Alkisahnya, aku baru sampai rumah. aku perasan ada kunci kereta dalam paperbag.

Okaaaayyyyyyy bestnye. laki aku nak surprise kan aku neh. Aku tgk cik abang aku tersengih2. Walaweh..Macam dalam cik bunga encik sombong tuh. Dapat hadiah kereta. Perghh pengaruh cerita..tak bley blah.

Bestnye..dalam masa 5 minit aku dah fikir. Mana nak park, agak2 kalau aku sewakan pun ok gak.

Eh, mana keretanya.
Aku pun try la tekan button.

Perodua Viva!!!!. Parked kat sebrang jalan. OMG,! takpela. Second pun second la. Jimat sikit belanja minyak kot.

Rupa2nya:
1. Laki aku sengih2 tgk mesej whatsapp.
2. Diapun pelik kenapa ada kunci keta extra.
3. keta tuh belongs to couple yang tolong kami angkat barang tadi. Aku tinggal mesej kat keta aku.
4. Kunci dah pulang balik.
5. Tkde hadiah kereta.
6. Sekian.

BRT-SUNWAY LINE

http://www.carlist.my/news/free-rides-brt-sunway-line-next-two-months/14168?utm_source=facebook&utm_medium=cpc

Neh cerita PM naik BRT Sunway line.aku tak berminat nak komen pasal dia.

BRT Stands for Bus Rapid Transit. Macam.LRT tuh tapi guna bas. Buat masa neh, laluan.pun se coet je.

Siapa2 yang duk.dekat2 tuh boleh la try. Dekat sangat dengan rumah aku. Tapi service neh start dari komuter setia jaya sampai USJ 1 depan Summit.tuh. maybe lepas neh akan ada extension kot.

Tapi kalau ikut.map meh, nampak.macam ada  stesen pertukaran dengan LRT. bagus gak tuh.

Kalau maintenance dan jadual cantik, aku rasa ramai.je yang akan.guna.

Lepas tuh, mentaliti orang ramai satu hal la. Kat stesen.mentari.neh aku tgk.siap ada lift. Excellent. Cuma buat masa sekarang, aku.tak.nampak.nak.park.kereta kat mana lagi. Takkan nak.menapak dari rumah kan.

Tapi serius, sejak ada BRT neh, jalan.kat PJS 8/9 neh pun cerah je, cantik.je. aku siap plan nak.jogging kat jalan besar neh plak. Amacam, kau hado?

Audit oh audit

Hari tuh kat miri.
Pastuh IFT. Pastuh GO2.

Today, kemaman office.
Penat dah 2minggu audit saja.
Dengan demam and flu, memang terbaik.

Dah habis? Belum bro beluumm...
Ada lagi GO2 Project and HQ.

Must be done sebelum aku operate 4 Jun.

Gambar neh lead auditor aku. Kak Ti namanya. Suka sangat aku jadi auditor.

Next is Kerteh airport. Yup, cenonet je.

Okla.nak masuk kapal dah. Eh dah masuk dah pon. Kak Ti lagi.